PDA

View Full Version : 10 yr old with a goiter Thyroiditis questions


Mom2GirlsTX
12-19-2009, 05:33 PM
dd#2 just turned 10. She is adopted and I do not know family medical history. She has a seizure disorder and is off the charts for hyperactivity and focus. She had 2 strokes before 6 months of age. Medications are Trileptal, Focalin (15mg) Zyrtec and Nasonex and 6 mg of Melatonin a night to sleep.

This past Monday she said her throat was hurting her, I took a flashlight and looked. She said it was sore to swallow. It was not red at all, so I thought maybe allergies or she slept with her mouth open. Tuesday she was very tired and around 9:00 pm her neck started to look a tiny bit larger. Wednesday morning the area around the bottom area of neck was about 1 inch bigger than top part of neck. I took her to pediatrician (our regular is on vacation, this was fill in dr), she said goiter, ran bloodwork. Bloodwork came back yesterday, thyroid is in normal range, but they are sending her to an Endocrinologist at Children's hospital. This dr. said she had phone conversation with the Endocrinologist and he wants to see dd. She is having an ultrasound this coming Wed. Dr. said it is thyroiditis and endocrinologist will explore causes, etc.

I am concerned about so many things. Thyroid runs in my family, and I am all to aware of how your thyroid can make you act/react abnormally when it is not adjusted correctly. I am wondering if her non stop, never stopping talking could aggravated by her thyroid. Even her thyroid levels are normal, obviously something is wrong or her thyroid gland would not be swollen.

Has anyone dealt with this? Advice? thanks!

TracyR
01-04-2010, 04:58 PM
Actually I am going through this right now. My symptoms are a bit different though. My neck is slightly swollen but I am not having issues with swallowing or sore throats or anything.
My blood work also keeps coming back in 'normal' ranges even though I've been on .25 of Synthroid for the past 6yrs.
There is a very good website called Real Thyroid Help (http://www.realthyroidhelp.com/). There are many families on there that have children with hypothyroidism and they can be very helpful to you.
The thyroid is a VERY complex organ. Many doctors have their own version of what they consider is the 'normal' range and they also like to throw synthetic drugs at you, when we should be taking dessicated thyroid to treat the problem.
I know I get frustrated at times just reading about the different problems that occur with hypo/hyperthyroidism.

I just went today for the sono and blood work so I'm going to be curious to see if my blood work comes back "normal" again.

Hang in there. Obviously she has thryoid problems. Hopefully the Endocrinologist will be helpful, and go to that website for more info.